Showing posts with label Stichting Hernia Diafragmatica. Show all posts
Showing posts with label Stichting Hernia Diafragmatica. Show all posts

Wednesday, July 23, 2014

Working Together

Members of ACDHO work together often in the fight against Congenital Diaphragmatic Hernia:

 Mass General and DHREAMS often work together to share lab samples for genetic research of CDH

 Joy Perkins and Dr. David Kays of Shands for Kids and Dawn of CHERUBS

 Clair Maher of UK CHERUBS with Dawn Williamson of CHERUBS



The very first CDH leaders; Dawn of CHERUBS and Onno Zwart of Stichting Hernia Diafragmatica.   Stichting Hernia Diafragmatica just celebrated their 20th year!

Wednesday, November 20, 2013

Stichting Hernia Diafragmatica

ACDHO is very happy to announce the addition of another member!

We proudly welcome
Stichting Hernia Diafragmatica, which is the world's first CDH charity and is based in The Netherlands!


http://www.chd.vuurwerk.nl/

https://www.facebook.com/pages/Stichting-Hernia-Diafragmatica/446008458744090


http://www.chd.vuurwerk.nl/


De Stichting Hernia Diafragmatica is opgericht in 1993

De doelstelling in het kort:

Steun geven aan hen die te maken hebben of krijgen met een KIND met een AANGEBOREN hernia diafragmatica.


Founded in 1993, by a group of parents. The primary goals were to arrange for parents to meet each other and to acquire knowledge about the disorder.