Tuesday, May 31, 2016

2016 International Congenital DIaphragmatic Hernia Conference

Holidy Inn Paris - Porte De Clicy
August 4 - 8, 2016

Rooms are 130 Euro for 2 people.   Reservations can be made by e-mailing lo@hiparisclichy.com

Because there is such a huge need for more information and support in Europe, we work with other ACDHO organizations to bring resources to more families there by holding our conference in Europe every other year (and American conferences in between).

Please register every member of  your family to attend.  Attendance is free.

Register at https://www.eventbrite.com/e/2016-international-congenital-diaphragmatic-hernia-conference-tickets-25801962364

Speakers this year:

Wednesday, July 23, 2014

ACDHO 2014 CDH Conference in Dublin


The very first CDH Conference for families in Europe is underway in just 2 weeks!  Over 100 have registered already for this historic event!

Register at http://www.eventbrite.co.uk/e/acdho-2014-european-cdh-conference-tickets-6903985005


Monday, August 11th
6:00 pm - Pizza Party, Introductions

Tuesday, August 12th
9:30 - 2:30 - CDH Awareness Day

Wednesday, August 13th
9:30 - 2:30 Medical Speakers
Free Genetic Testing

Thursday, August 14
CDH Support
Conference Close
CDH Celebration

Friday, August 15th
Check out


Working Together

Members of ACDHO work together often in the fight against Congenital Diaphragmatic Hernia:

 Mass General and DHREAMS often work together to share lab samples for genetic research of CDH

 Joy Perkins and Dr. David Kays of Shands for Kids and Dawn of CHERUBS

 Clair Maher of UK CHERUBS with Dawn Williamson of CHERUBS

The very first CDH leaders; Dawn of CHERUBS and Onno Zwart of Stichting Hernia Diafragmatica.   Stichting Hernia Diafragmatica just celebrated their 20th year!

Wednesday, November 20, 2013

Stichting Hernia Diafragmatica

ACDHO is very happy to announce the addition of another member!

We proudly welcome
Stichting Hernia Diafragmatica, which is the world's first CDH charity and is based in The Netherlands!




De Stichting Hernia Diafragmatica is opgericht in 1993

De doelstelling in het kort:

Steun geven aan hen die te maken hebben of krijgen met een KIND met een AANGEBOREN hernia diafragmatica.

Founded in 1993, by a group of parents. The primary goals were to arrange for parents to meet each other and to acquire knowledge about the disorder.

Friday, November 1, 2013

CDH-New Zealand

ACDHO is very happy to announce the addition of another member!

We proudly welcome CDH-New Zealand, which is now supporting CDH families in New Zealand!


This page has been created for parents and family members to share stories, gain info and keep in touch with anyone else that are or has been affected by CDH (Congenital Diaphragmatic Hernia) in New Zealand.

HDC Hérnia Diafragmática Congenita Brasil

ACDHO is very happy to announce the addition of another member!

We proudly welcome HDC Hérnia Diafragmática Congenita Brasil, which is now supporting CDH families in Brazil!



O diafragma é um musculo que separa o tórax (coração e pulmões) do abdôme (estômago, fígado, intestino e outras vísceras). Além de separar as duas cavidades o diafragma é também o músculo mais importante envolvido nos movimentos respiratórios. Uma hérnia diafragmática é uma malformação do músculo (um pequeno defeito ou "buraco"), permitindo que o conteúdo da cavidade abdominal passe para o tórax.

No início da gestação, quando o bebê ainda está se formando, existe um "buraco" no diafragma. Isto é normal, mas este "buraco" normalmente se fecha no terceiro mês de gestação. Isto acontece em cerca de 1 em cada 2.500 gestações. O fato dos órgãos abdominais terem subido até o tórax impede o desenvolvimento adequado dos pulmões, causando uma condição conhecida como hipoplasia pulmonar. Isto significa que os pulmões são menores do que eles deveriam ser.