Olivia Faith Foundation, Inc

Meet Alliance of Congenital Diaphragmatic Hernia Organizations - ACDHO member, the Olivia Faith Foundation, Inc

A non-profit 501(c)3 Organization 

• Raising global awareness for CDH
• Providing support to families affected by CDH and other conditions
• Awarding scholarships to students seeking a career in fetal therapy 
• Aiding other organizations in research, prevention and treatments.

 Olivia Faith was diagnosed with CDH at her 20 week ultrasound  While still in the womb she survived a surgery that would give her poorly developing lungs a chance to grow. She was born on October 28, 2011 and had surgery to repair her diaphragm at 1 week old.  After 7 weeks in the NICU, with Mommy and Daddy by her side, she passed into eternal life on December 18th 2011. 

Learn more at http://www.oliviafaithfoundation.org/

Visit their Facebook page at http://www.facebook.com/pages/Olivia-Faith-Foundation-Inc/48601600474466

Olivia Faith Foundation, Inc PO Box 690053 Vero Beach, FL 32969 

DHREAMS Research Study (Congenital Diaphragmatic Hernia)

 

Meet Alliance of Congenital Diaphragmatic Hernia Organizations - ACDHO member, the DHREAMS Research Study (Congenital Diaphragmatic Hernia).

DHREAMS study was created to improve the understanding of the molecular genetic basis of CDH

Mission:

DHREAMS (Diaphragmatic Hernia Research & Exploration; Advancing Molecular Science) study was created to improve the understanding of the molecular genetic basis of CDH. This National Institute of Health (NIH)-funded research team is composed of health care providers and researchers across the country, coordinated at Columbia University Medical Center. Multiple medical centers are enrolling individuals and families with CDH. The knowledge gained through this research will lead to improved diagnosis, treatment, and quality of life for individuals and families with CDH.

Overview:

The DHREAMS study is an NIH funded multicenter national research study of congenital diaphragmatic hernia (CDH). The goal of our study is to improve the understanding of the causes of CDH.

General Information:

Each year more than 1,000 babies in the United States are born with a Congential Diaphragmatic Hernia (CDH). For the majority of these babies, the cause of the CDH is unknown.

Learn more at http://www.cdhgenetics.com/

Welcome

Welcome to the official web site of the Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO), an International group of professional charity and research organizations working together to better serve babies and families affected by Congenital Diaphragmatic Hernia.