ACDHO on Facebook

For more to up-to-date news on the member organizations of ACDHO, please visit https://www.facebook.com/CDHorganizations/

(pictured above are the leaders of 4 CDH organizations)

2017 International CDH Conference

Join us for the 2017 International CDH Conference, hosted by CHERUBS.

Register to attend the largest annual CDH event and the first conference in the midwest in several years!

https://www.eventbrite.com/e/cherubs-2017-international-cdh-conference-tickets-34729628253

https://www.facebook.com/events/1195689943852269/

Meet other CDH families, learn the latest CDH research, share your stories, build new relationships and work together to help the cause.   This event is fun for the whole family, free and an excellent source of CDH support.

Join 5 CDH charities at the 2016 International CDH Conference in Pari

Join 5 CDH charities at the 2016 International CDH Conference in Paris Aug 4-8  http://www.cdhconference.org

2016 International Congenital DIaphragmatic Hernia Conference

Holidy Inn Paris - Porte De Clicy
August 4 - 8, 2016
www.hiparisclichy.com

Rooms are 130 Euro for 2 people.   Reservations can be made by e-mailing lo@hiparisclichy.com

Because there is such a huge need for more information and support in Europe, we work with other ACDHO organizations to bring resources to more families there by holding our conference in Europe every other year (and American conferences in between).

Please register every member of  your family to attend.  Attendance is free.

Register at https://www.eventbrite.com/e/2016-international-congenital-diaphragmatic-hernia-conference-tickets-25801962364

Speakers this year:

• David Kays, MD
• CHERUBS (International)
• Stichting Hernia Diafragmatica (Netherlands)
• APEDHia (France)
• Hernie Diaphragmatique - groupe de soutien (France)
• La vida con Hernia Diafragmática Congénita (Spain)
• More to be listed soon!

ACDHO 2014 CDH Conference in Dublin

 

The very first CDH Conference for families in Europe is underway in just 2 weeks!  Over 100 have registered already for this historic event!

Register at http://www.eventbrite.co.uk/e/acdho-2014-european-cdh-conference-tickets-6903985005


CONFERENCE SCHEDULE

Monday, August 11th
6:00 pm - Pizza Party, Introductions

Tuesday, August 12th
9:30 - 2:30 - CDH Awareness Day

Wednesday, August 13th
9:30 - 2:30 Medical Speakers
Free Genetic Testing

Thursday, August 14
CDH Support
Conference Close
CDH Celebration

Friday, August 15th
Check out

Download the conference program

Working Together

Members of ACDHO work together often in the fight against Congenital Diaphragmatic Hernia:

 Mass General and DHREAMS often work together to share lab samples for genetic research of CDH

 Joy Perkins and Dr. David Kays of Shands for Kids and Dawn of CHERUBS

 Clair Maher of UK CHERUBS with Dawn Williamson of CHERUBS

The very first CDH leaders; Dawn of CHERUBS and Onno Zwart of Stichting Hernia Diafragmatica.   Stichting Hernia Diafragmatica just celebrated their 20th year!

Stichting Hernia Diafragmatica

ACDHO is very happy to announce the addition of another member!

We proudly welcome Stichting Hernia Diafragmatica, which is the world's first CDH charity and is based in The Netherlands!


http://www.chd.vuurwerk.nl/

https://www.facebook.com/pages/Stichting-Hernia-Diafragmatica/446008458744090

De Stichting Hernia Diafragmatica is opgericht in 1993

De doelstelling in het kort:

Steun geven aan hen die te maken hebben of krijgen met een KIND met een AANGEBOREN hernia diafragmatica.

Founded in 1993, by a group of parents. The primary goals were to arrange for parents to meet each other and to acquire knowledge about the disorder.